Tuesday, April 10, 2018

#WearGray4PD

#WearGray4PD

Link above published today on HealthUnion.net!  Check it out!

And, here we are in 2012 wearing our gray....

Wednesday, March 21, 2018

Small Town Advocate for Big Time Issue


Small Town Advocate for Big Time Issue

Sharing the above article that published on Health Union's ParkinsonsDisease.net while Violet and I are attending the Parkinson's Policy Forum in Washington, DC.  Today, March 21st, is Parkinson's Advocacy Day where 300 people from across the country will contact our Members in Congress to fund critical research for NIH and DOD. 

More cool news to come!

Sunday, March 18, 2018

Martinsburg Journal Parkinson's Feataure


Family to Attend Parkinson's Forum

(Link above) Thank you to reporter Tricia Strader for talking with us about our experience with Parkinson's Disease and participation in the upcoming advocacy forum in Washington, DC.

Friday, March 16, 2018

Advocates for Parkinson's disease go to D.C.

Advocates for Parkinson's disease go to D.C.: Families have their ups and their downs, but sticking together when times get rough makes bonds stronger than ever.



In preparation to attend the Parkinson's Policy Forum, Dan was interviewed by local WDVM.  Check it out

Thursday, March 15, 2018

My Dad Has Parkinson's


My Dad Had Parkinson's

Health Union published my second article today on ParkinsonDisease.net!  Woot Woot!  (Link is above...please comment/and share!)

This features a very adorable Film Director, Levi Hott, sharing his story.  We are excited to share this for the Parkinson's Policy Forum in Washington, DC, and show our representatives!

Sunday, March 4, 2018

How to Disagree using Positive Actions

The craziest coincidence occurred to me this morning.

I was preparing my weekly Positive Action lesson plans and Daily Community Vlogcasts.  For the second week in a row, I was unsure whether or not there would be school tomorrow due to the teacher strikes occurring here in West Virginia.  I am not an employee of a county Board of Education; however, I am an hourly facilitator for character education class provided by our Morgan County Partnership. So, inadvertently my job has also been affected by the stike too (and, I have two students in WV public school).

Please allow me to explain.  In the school where I work, I write a daily vlog with content concerning character education and material related to raising student assets with promoting students social and emotional well being in order to achieve academic success.  Much of the content I prepared happened over the summer months before school even started; writing blogs, filming videos, and researching videos to correlate with daily themes that encourage students to make positive choices, being kind to one another, and creating a caring climate.

Imagine my surprise when this week's feature scheduled for March 8th is Kid President talking about "How to Disagree"...check it out.



Pause.
Breathe.
LOVE.

To see the vlogcast in its entirety that is scheduled to post THIS Thursday, March 8th, click here:  How to Disagree by Kid President

Crazy how this vlog was scheduled this week!

Monday, February 26, 2018

An American Pie Parody Returns for West Virginia Teachers, and Tax Payers


As I was writing our Community Vlogcasts for Positive Actions this week, not knowing if I would get to go to work while waiting to hear if the teacher's strike would continue here in Morgan County, well... here in West Virginia..., all the news of unions, PEIA, teacher's salaries, health coverage, WV public employees, tax payers,... it all got me thinking about a little parody I prepared nearly five years ago.  

Here is my revised version, now sadly #2 version, of American Pie, utilizing a little liberty with the "levee" and hoping we all will start "thinkin' past tomorrow."

Sing along with me.  Come on....I know you know the melody!

 A long, long time ago
I can still remember how that teacher used to make me smile
And I knew if I had my chance
That I could make those students dance
And maybe they'd be happy for a while
But now May 8th makes me shiver
With every Facebook post I quiver
Bad news on the doorstep
I couldn't take more more ed-
itorial in the Morgan Mess
When I read about the other side
But something touched me deep inside
The day the teachers cried

So, bye-bye, Miss American Pie
Drove my School Board to the Levy
But the Levy was dry
And the ole Sheetz boys were drinkin' coffee and high
Singing this'll be the day that they cry
This'll be the day that they cry

Did you vote for the Levy then
In the 50's it was when
Morgan County they began
Do you believe in your success
Can schools save us from the rest
And can you teach me how to do with less
'Cause I saw you spendin in the store
You both bought brand news shoes and more
Man, I want some of those too
I was a lonely tax payin' broncin buck
With bills and kids in a Suburban truck
But, I knew I was out of luck
The day the levy died
I started singin'

Bye-bye, Miss American Pie
Drove my School Board to the Levy
But the Levy was dry
Banks left town, with others not far behind
Singing this'll be the day that they cry
This'll be the day that they cry

For five decades, we've been on our own
Now, May and his teachers strikin' all alone
But that's not how it might soon be
With the levy gone jobs at the Dairy Queen
will be all our kids have seen
Said a voice that came from you and me
Oh, and while the King was looking down
And Brooks tried again to steal His thorny crown
The courtroom was adjourned
Kate's verdict was returned
And while Lenin read a book on Marx
The band still practiced in the park
Parents sang dirges in the dark
The day the levy dies
We'll be singing...

Bye-bye, Miss American Pie
Drove my School Board to the levy
But the Levy was dry
And the ole Sheetz boys are drinkin' coffee and high
Singing this'll be the day that they cry
This'll be the day that they cry

I met a mom who sang the blues
And I asked her for some happy news
But she just smiled and turned away
I too have bills at the sacred store
Where my kids need fed like yours before
But the man there said the levy wouldn't pay

And in the streets the students screamed
The teachers cried, and the parents dreamed
But not a word was spoken
School buildings all were broken
And the three men I admire the most
The Father, Son and the Holy Ghost
They caught the last train for the coast
The day the levy died
And they were singing

Bye-bye, Miss American Pie
Have we learned anything?
With the Levy gone dry?
And the ole Sheetz boys still drinkin' coffee and high
Singing this'll be the day that they cry
This'll be the day that they cry

Saturday, December 30, 2017

It's Time

"It's time."

It's time for school.  It's time for work.  It's time to buy groceries.  It's time to pick up the kids.  It's time to go to town.  It's time to run a load of laundry; get dinner started; clean the house; take a shower; look at lesson plans; get up, go here, get dressed, go there, brush teeth, take a pill, eat, sleep, breathe, pee!...

It's time...

...for a D.B.S.!

Holy crap!  Really?   Like the rest of the world rolling ever closer to the end of 2017, this now 52-year-old-gray-haired-PD bloggin'-hott-mama-of-4 with an endless tirage of time for stuff to do came to a screeching halt recently when she heard a very smart doctor say to my hotthubby, Dannypoo, "It's time for a D.B.S."

Wait....what?

I've heard of DBS, or Deep Brain Stimulation, before.  Of course we have.  A DBS is a surgical therapy for people with Parkinson's Disease.  Sure, we have even met a few PD friends who have undergone this procedure.

But, like normal...I decided to file DBS away and pretend it is only for people with crazy symptoms, super rich, and well, last resort ditch efforts to maintain a "normal" quality of life.  Besides, from the little I heard,  getting a DBS is a super scary BRAIN surgery where the patient stays AWAKE!  Nah....not my hotthubby, right?

Wrong.

After tweaking a wide range of medications and watching stinking Parkinson's Disease symptoms creep up for the last 10 years since his diagnosis, in 2017 we heard "It's time for a DBS."

"In DBS surgery, thin wires called electrodes are placed into one or both sides of the brain in specific areas (either the subthalamic nucleus or the globus pallidus interna) that control movement."  Deep Brain Stimulation for Dan has been on the horizon for a few years now.  However, over the past few months, we have been to a number of appointments with neurologists and, just before the holidays, met (get this) virtually with a neurosurgeon at the Richmond Veteran's Administration, Dr. Kathryn Holloway.  According to the DBS nurse, Dr. Holloway is a "rock star" when it comes to DBS surgery.  She has done 500 Deep Brain Stimulation procedures with success.  And as a US Air Force Veteran, the surgery can occur, ironically, as part of Dan's VA "benefits".  Wow.  

Time to ramp up advocacy for Parkinson's awareness, funding for research, and development of a cure!  Maybe the Michael J Fox Foundation for Parkinson's Research can fix PD before Dr. Holloway drills a hole in Dan's head!

All the nerves aside, want to know something pretty cool about DBS?  In one of Dan's many appointments, I heard someone say (and I don't remember who said it) that a successful DBS can "set the clock back 10 years" on Parkinson's symptoms.

10 years!

Levi, our youngest, was only 2 years old ten years ago!  Both our sons have no idea of what their daddy was like before the physical limitations of Parkinson's Disease.  A DBS?

It's about time.

"There is a appointed time for everything. 
And there is a time for every event under heaven..."  
Ecclesiastes 3:1


(Return for more "It's Time" blogs to journal our 2018 DBS Journey... Your prayers and support are needed and encouraged!)